Table 3 Children and parent’s responses to the study specific questions about satisfaction with care, both JASP-1 and control group presented with mean values, CI and P-values

Were the healthcare professionals (HCP) well versed in your/your child’s health record? *

4.82

(4.73 − 4.91)

4.48

(4.3 − 4.74)

0.010*

Did the HCP take your/your child’s experiences of the health condition into account? *

4.91

(4.83 − 4,.9)

4.70

(4.53 − 4.74)

0.001*

Did the HCP treat you/your child with compassion and care?

4.94

(4.88 − 4.99)

4.94

(4.85 − 5.03)

0.988

If you/your child spoke with several HCP, were they consistent in their communication? *

4.77

(4.64 − 4.90)

4.50

(4,21 − 4.79)

0.029*

Did you/your child get the opportunity to ask the questions you wished?

4.95

(4.90 − 5.0)

4.85

(4,.72 − 4.98)

0.078

If you/your child asked questions of the HCP did you/your child, get answers you understood? *

4.86

(4.76 − 4.96)

4.58

(4.36 − 4.79)

0.002*

If the HCP spoke with each other about you/your child, were you/your child included in the conversation?

4.88

(4.80 − 4.96)

4.63

(4.32 − 4.94)

0.108

Were you involved in the decisions regarding your/your child’s care and treatment to the extend you wished?

4.79

(4.70 − 4.89)

4.75

(4.57 − 4.93)

0.726

Did you/your child receive sufficient information about how the health condition can affect the everyday life? *

4.74

(4.62 − 4.87)

4.28

(3.97 − 4.59)

0.001*

Did you/your child receive enough information about where to turn to for help if you had additional questions after the visit? *

4.79

(4.68 − 4.91)

4.10

(3.67 − 5.53)

< 0.001*

Did the HCP explain the treatment/medication in a way you/your child understood?

4.80

(4.69 − 4.90)

4.61

(4.30 − 4.92)

0.463

If you/your child felt uncomfortable about the health condition or medication, were you met with compassion and care?

4.83

(4.72 − 4.94)

4.69

(4.42 − 4.96)

0.290

Did you/your child have the opportunity to get emotional support from the HCP if necessary? *

4.75

(4.57 − 4.92)

4.14

(3.35 − 4.56)

< 0.001*

Would you recommend the PRC to others in the same situation? *

5.0

(5.9 − 5.0)

4.91

(4.80 − 5.01)

0.006*

Do you believe that the PRC coordinated the visits to the extend you needed? *

4.85

(4.76 − 4.93)

4.27

(3.94 − 4.59)

< 0.001*

How do you assess your/your child’s health condition? *

4.33

(4.17 − 4.49)

3.68

(3.29 − 4.06)

0.002*