Table 4 Children’s responses to the study specific questions about satisfaction with care, both JASP-1 and control group presented with mean values and CI

Were the healthcare professionals (HCP) well versed in your health record?

4.82

(4.68 − 4.96)

4.67

(4.12 − 5.21)

Did the HCP take your experiences of the health condition into account?

5.0

(5.0–5.0)

4.89

(4.63 − 5.15)

Did the HCP treat you with compassion and care?

4.94

(4.86 − 5.02)

5.0

(5.0–5.0)

If you spoke with several HCP, were they consistent in their communication?

4.74

(4.47 − 5.0)

4.57

(3.52 − 5.62)

Did you get the opportunity to ask the questions you wished?

5.0

(5.0–5.0)

4.89

(4.63 − 5.15)

If you asked questions of the HCP did you, get answers you understood?

4.82

(4.61 − 5.03)

4.44

(3.89 − 5.0)

If the HCP spoke with each other about you, were you included in the conversation?

4.84

(4.70 − 4.98)

4.17

(2.77 − 5.56)

Were you involved in the decisions regarding your care and treatment to the extend you wished?

4.79

(4.64 − 4.94)

5.0

(5.0–5.0)

Did you receive sufficient information about how the health condition can affect the everyday life?

4.79

(4.56 − 5.02)

4.25

(3.51 − 4.99)

Did you receive enough information about where to turn to for help if you had additional questions after the visit?

4.79

(4.63 − 4.96)

3.57

(2.17 − 4.97)

Did the HCP explain the treatment/medication in a way you understood?

4.88

(4.77 − 5.0)

4.88

(4.58 − 5.17)

If you felt uncomfortable about the health condition or medication, were you met with compassion and care?

4.84

(4.67 − 5.01)

5.0

(5.0–5.0)

Did you have the opportunity to get emotional support from the HCP if necessary?

4.77

(4.56 − 4.98)

4.50

(3.62 − 5.38)

Would you recommend the PRC to others in the same situation?

5.0

(5.0–5.0)

4.88

(4.58 − 5.17)

Do you believe that the PRC coordinated the visits to the extend you needed?

4.94

(4.85 − 5.03)

4.38

(3.61 − 5.14)

How do you assess your health condition?

4.26

(3.96 − 4.57)

3.13

(2.30 − 3.95)