Table 5 Parents’ responses to the study specific questions about satisfaction with care, both JASP-1 and control group presented with mean values, CI and P-values

Were the healthcare professionals (HCP) well versed in your child’s health record?

4.82

(4.96 − 4.95)

4.55

(4.23 − 4.87)

0.112

Did the HCP take your experiences of the health condition into account?

4.85

(4.70 − 5.0)

4.75

(4.54 − 4.96)

0.164

Did the HCP treat you and your child with compassion and care?

4.93

(4.84 − 5.01)

4.90

(4.76 − 5.04)

0.743

If you spoke with several of the HCP, were they consistent in their communication?

4.79

(4.66 − 4.93)

4.59

(4.27 − 4.91)

0.209

Did you get the opportunity to ask the questions you wished?

4.90

(4.80 − 5.0)

4.90

(4.76 − 5.04)

1.000

If you asked questions of the HCP, did you get answers you understood?

4.88

(4.77 − 4.98)

4.70

(4.48 − 4.92)

0.101

If HCP spoke with each other about your child, were you included in the conversation?

4.90

(4.77 − 5.02)

4.71

(4.40 − 5.01)

0.106

Were you involved in the decisions regarding your child’s care and treatment to the extend you wished?

4.77

(4.62 − 4.93)

4.75

(4.49 − 5.01)

0.964

Did you/your child receive sufficient information about how the health condition can affect the everyday life? *

4.70

(4.53 − 4.87)

4.25

(3.82 − 4.68)

0.045*

Did you/your child receive enough information about where to turn to for help if you had additional questions after the visit? *

4.77

(4.60 − 4.94)

4.21

(3.69 − 4.73)

0.015*

Did the HCP explain the treatment/medication in a way you and your child understood?

4.70

(4.52 − 4.88)

4.42

(3.93 − 4.91)

0.453

If you/your child felt uncomfortable about the health condition or medication, were you met with compassion and care?

4.84

(4.67 − 5.0)

4.53

(4.12 − 4.93)

0.062

Did you and your child have the opportunity to get emotional support from the HCP if necessary? *

4.72

(4.43 − 5.01)

3.38

(2.44 − 4.33)

< 0.001*

Would you recommend the PRC to others in the same situation? *

5.0

(5.0–5.0)

4.90

(4.76 − 5.04)

0.044*

Do you believe that the HCP at the PRC coordinated the visits to the extend you needed? *

4.77

(4.64 − 4.91)

4.28

(3.83 − 4.72)

0.019*

How do you assess your child’s health condition? *

4.37

(4.19 − 4.56)

3.70

(3.29 − 4.29)

0.031*