Table 2 Characteristics of Research Subjects
From: Autoimmune rheumatic transitional care model development
Characteristics of Research Subjects | N = 27 |
|---|---|
Gender, n (%) | |
Female | 23 (85,2) |
Male | 4 (14,8) |
Treatment funding, n (%) | |
National health insurance (JKN) | 27 (100) |
Private insurance | 0 (0) |
Self-paid | 0 (0) |
Language, n (%) | |
Indonesian | 27 (100) |
Foreign language | 0 (0) |
Last education, n (%) | |
Elementary school | 0 (0) |
Middle school | 3 (11,1) |
High school | 24 (88,9) |
Domicile, n (%) | |
Jakarta and nearby areas | 25 (92,6) |
Others | 2 (7,4) |
Transportation, n (%) | |
Personal transportation | 12 (44,4) |
Public transportation | 14 (51,9) |
Airplane | 1 (3,7) |
Boat | 0 (0) |
Clinical data | |
Age at diagnosis, mean (SD), in years | 14,52 (± 1,7) |
Age at transition, median (min–max), in years | 18 (18–19) |
Age of onset, median (min–max), in years | 14 (4–17) |
Duration of treatment in pediatric clinic before transition, median (min–max), in years | 45 (6–100) |
Diagnosis in Pediatric Clinic, n (%) | |
SLE | 21 (77,8) |
JIA | 3 (11,1) |
Others | 2 (7,4) |
Not available (N/A) | 1 (3,7) |
Diagnosis in Rheumatology clinic, n (%) | |
SLE | 23 (85,2) |
JIA | 4 (14,8) |
Others | 0 (0) |
Difference in diagnosis between pediatric and rheumatology clinic, n (%) | |
Yes | 2 (7,4) |
No | 24 (88,9) |
Unknown | 1 (3,7) |
Medication change after transition, n (%) | |
Yes | 14 (51,9) |
No | 10 (37) |
Unknown | 3 (11,1) |
Disease Activity at diagnosis, n (%) | |
Remission | 0 (0) |
Mild | 0 (0) |
Moderate | 1 (3,7) |
Severe | 0 (0) |
Not available (N/A) | 26 (96,3) |
Disease Activity at transition, n (%) | |
Remission | 2 (7,4) |
Mild | 5 (18,5) |
Moderate | 3 (11,1) |
Severe | 5 (18,5) |
Not available (N/A) | 12 (44,4) |
Disease Activity 3 months after transition, n (%) | |
Remission | 6 (22,2) |
Mild | 9 (33,3) |
Moderate | 4 (14,8) |
Severe | 3 (11,1) |
Not available (N/A) | 5 (18,5) |
Quality of Life | |
Physical health, mean (SD) | 61,41 (± 18,09) |
Psychological health, mean (SD) | 65,05 (± 17,09) |
Social relationship, mean (SD) | 60,85 (± 17,38) |
Environment, mean (SD) | 66,52 (± 16,14) |
Medication adherence, n (%) | |
Good (pill count ≥ 80%) | 25 (92,6) |
Poor (pill count < 80%) | 0 (0) |
Unable to count | 2 (7,4) |
Adherence to treatment schedule 3 months after transition, n (%) | |
Poor (Goes to clinic > 1 month or disobeying doctors) | 2 (7,4) |
Good (Goes to clinic < 1 month and obeying doctors) | 25 (92,6) |
Hospitalization frequency 3 months after transition, median (min–max) | 0 (0–2) |
Social support | |
Yes | 27 (100) |
No | 0 (0) |